Saturday, October 31, 2009
Happy Halloween! I went to Nana and Popas for pizza and inside door to door-I got an Elmo hat, some socks, a mixer for my formula, and some blankets...it was cool!Nana had all the adults go to a different bedroom and us kids got to knock on each door for treats........IT WAS SO FUN!!The we treated around the neighborhood.
Friday, October 30, 2009
Thursday, October 29, 2009
"just a shout out to my homies"
Tiffany and Erin....you can tell when its not "just a job" and I will remember you forever. You touched my soul with compassion, and love...thank you for caring that much.
And to my docs....man, I know I will not be able to list all of you...but just a few..
Hyein...she is so cute and loves to give me a head noogie-every time.
Dr Benkowski...I think he's tenderhearted more than he lets on. He tries to be all professional but I know..
Dr Stevenson....what a kind soul- his compassion and thought into every detail is so amazing...Do you think he has a messy bedroom (I doubt it - he seems to be so detailed).
Then there is the doc that finally placed my NJ tube--AWESOME JOB DUDE!
And I already told you about Chris the midevil M&M pusher....
But most of all Mommy....she is so brave, strong and courageous. I just heart her sooo much! When she comes in every morning the FIRST thing that she does is squeal "heeellllooooo babbbyyy!" and then plants wet ones all over me for 5 minutes. Then she says Hi to everyone else.
They tested my hearing yesterday...they say my hearing is on the fritz and I hear about as good as I see.....I hear and see all I need to....it may not be much but I know when its mommy (or pretty much most anyone else in my family) but especially mommy. I know when Teagan is holding me too and kissin me...he is an awesome big bro. - he also includes me and gives me toys.
I cant say enough about the new buddies to my shout out list...the palliative care team....I envy Olneys hair...Olney has a quiet inside confidence- inner peace about him. Toni, she is the marathon gal of the group....She is in for the distance. The chaplain, Michael...dont cross him- not only is he close to God BUT he is one big dude! Joan....she is squishy and army tough all in one package. Beth....an angel. Then there is the Doc .........pretty much says it all- he heals...I love you all!
Mommy, I love you! MUAH back at you!
GUESS WHAT??? All of you nay-sayers that keep saying "hes a big boy" the docs (The professionals) say I am not fat. HA! They dont think I need a diet....the professionals have spoken!
Thanks for the rock Aunt Laura....I heart you too! You are going to be a good nana someday! :-)
And to my popa and nana....nothing but love. Thanks for the sleepovers! You are solid.
To my peeps on the homefront keeping the fires burnin....love you!Thanks for holdin down the fort so mommy, nana and popa could be with me.
Mommy......forever-its a promise!
Bosty
Tiffany and Erin....you can tell when its not "just a job" and I will remember you forever. You touched my soul with compassion, and love...thank you for caring that much.
And to my docs....man, I know I will not be able to list all of you...but just a few..
Hyein...she is so cute and loves to give me a head noogie-every time.
Dr Benkowski...I think he's tenderhearted more than he lets on. He tries to be all professional but I know..
Dr Stevenson....what a kind soul- his compassion and thought into every detail is so amazing...Do you think he has a messy bedroom (I doubt it - he seems to be so detailed).
Then there is the doc that finally placed my NJ tube--AWESOME JOB DUDE!
And I already told you about Chris the midevil M&M pusher....
But most of all Mommy....she is so brave, strong and courageous. I just heart her sooo much! When she comes in every morning the FIRST thing that she does is squeal "heeellllooooo babbbyyy!" and then plants wet ones all over me for 5 minutes. Then she says Hi to everyone else.
They tested my hearing yesterday...they say my hearing is on the fritz and I hear about as good as I see.....I hear and see all I need to....it may not be much but I know when its mommy (or pretty much most anyone else in my family) but especially mommy. I know when Teagan is holding me too and kissin me...he is an awesome big bro. - he also includes me and gives me toys.
I cant say enough about the new buddies to my shout out list...the palliative care team....I envy Olneys hair...Olney has a quiet inside confidence- inner peace about him. Toni, she is the marathon gal of the group....She is in for the distance. The chaplain, Michael...dont cross him- not only is he close to God BUT he is one big dude! Joan....she is squishy and army tough all in one package. Beth....an angel. Then there is the Doc .........pretty much says it all- he heals...I love you all!
Mommy, I love you! MUAH back at you!
GUESS WHAT??? All of you nay-sayers that keep saying "hes a big boy" the docs (The professionals) say I am not fat. HA! They dont think I need a diet....the professionals have spoken!
Thanks for the rock Aunt Laura....I heart you too! You are going to be a good nana someday! :-)
And to my popa and nana....nothing but love. Thanks for the sleepovers! You are solid.
To my peeps on the homefront keeping the fires burnin....love you!Thanks for holdin down the fort so mommy, nana and popa could be with me.
Mommy......forever-its a promise!
Bosty
Tuesday, October 27, 2009
No words
Somedays the english language fails to find the right words.....Today the doctors told mommy (and Popa).....I have a degenerative neurological disorder....and I am going to live with Father in Heaven soon.
I love you mommy! I wish there were the right words....but in your heart you already know them....you are my EVERYTHING! I love you with all my heart and then some.
Forever - its a promise.....your Bosty
I love you mommy! I wish there were the right words....but in your heart you already know them....you are my EVERYTHING! I love you with all my heart and then some.
Forever - its a promise.....your Bosty
Still at Primarys hanging out.....
I am still in 3013....guess what I have been doing??????????????
Oxygen....I am off now. My sats are really good- So why do I wheeze? Well, my neck is "floppy"
NG tube. They put it in and then they took it out and did a swallow test....I passed so then they gave me some reflux med and a bottle....then I cried for hours- my tummy hurt sooo bad....then I threw it all up. YUCK! I hate throwing up- it feels so awful and takes everything out of me to get it all out.
Blood....now I know its close to halloween, and those people come in EARLY in the morning and stick me good....Could they be vampires?????? Didnt know vampires did Genetic testing....good to know.
Tests...and more tests...MRI, EEG, EKG, hearing, throat scope...the list of people who want to see me is long...I must be pretty popular! I think I need to get 8x10 glossys and start signing autographs!
Then we had an amazing parade of Doctors....one after another for 4 hours came to see me, Mommy, Nana and Popa. All trying to figure me out. I am a complicated man....
Guess I will be hanging out here for a few more days while they check things out.
Oxygen....I am off now. My sats are really good- So why do I wheeze? Well, my neck is "floppy"
NG tube. They put it in and then they took it out and did a swallow test....I passed so then they gave me some reflux med and a bottle....then I cried for hours- my tummy hurt sooo bad....then I threw it all up. YUCK! I hate throwing up- it feels so awful and takes everything out of me to get it all out.
Blood....now I know its close to halloween, and those people come in EARLY in the morning and stick me good....Could they be vampires?????? Didnt know vampires did Genetic testing....good to know.
Tests...and more tests...MRI, EEG, EKG, hearing, throat scope...the list of people who want to see me is long...I must be pretty popular! I think I need to get 8x10 glossys and start signing autographs!
Then we had an amazing parade of Doctors....one after another for 4 hours came to see me, Mommy, Nana and Popa. All trying to figure me out. I am a complicated man....
Guess I will be hanging out here for a few more days while they check things out.
Saturday, October 24, 2009
Admit to Primary's
Today mommy and nana took me to be admitted to Primarys.
This really nice guy named Chris was my nurse...he was nice...BUT he gave me a M&M enema. Milk (whole, in case you are wondering- but I dont know why -I try to stay away from the fatty things) and molasses......then "taaaa-dahhhh!.....magic! Not to be too graphic but "target practice" would fit in this picture. Good thing Chris can move fast. That will teach him to hold my butt cheeks! HA! We will never each gingersnaps or molasses cookies again....enough said.
Well, at first they kept asking mommy if I had been exposed to any virus......I think she said no 50 times to 50 different people.
I threw up all over and forgot to start breathing....it was so scary...I just hate it! Then I did it again and they had to use some oxygen to get me to settle down. It was scary.
I was admitted to room 3013.
Lots of doctors, lots of tests and I just need to sleep.
Bosty
Friday, October 23, 2009
Not the swine flu
I still dont feel well.....its not the swine flu...its just me. I cant seem to breathe or eat or anything. My pooper is on the fritz again too. Sure wish things would get better.....
bosty
bosty
Thursday, October 22, 2009
Eye Doc
Yesterday I went with Mommy and Auntie Lucy to the eye doc.....every stinking time...they dialate my eyes so they can look at them....then I see fuzzy weird bright stuff for hours. Light is about 500 million times brighter when youve had your eyes dialated. WOWZERS!
Mommy and Auntie Lucy are so fun to hang out with...they just laugh and giggle the entire time....and I mean the entire time (no wonder they have to go potty).
Someone was watching us at Primary's....Mommy thought they were starring because of me and her protective mommy suit came out....Go Mommy!! I dont know if they were staring because I am different or not but mommy gets so tired of "the looks". Somedays I wish I had super powers that could make me invisable when I wanted to be....like the boy in the movie "The Incredibles".
I love you mommy- thanks for being a great protector......... and for going potty before the potty dance started....you're learning.
Kisses......your "Bosty-boo"
Mommy and Auntie Lucy are so fun to hang out with...they just laugh and giggle the entire time....and I mean the entire time (no wonder they have to go potty).
Someone was watching us at Primary's....Mommy thought they were starring because of me and her protective mommy suit came out....Go Mommy!! I dont know if they were staring because I am different or not but mommy gets so tired of "the looks". Somedays I wish I had super powers that could make me invisable when I wanted to be....like the boy in the movie "The Incredibles".
I love you mommy- thanks for being a great protector......... and for going potty before the potty dance started....you're learning.
Kisses......your "Bosty-boo"
Tuesday, October 20, 2009
Sick.....yuck.
Sunday I threw up all over....same story yesterday. Maybe I am sick....but it is hard to tell because I throw up quite often (not because I like it though- it just happens). So, Am I sick or is it just me? Hard to tell. Mommy is giving me cough medicine and keeping me nice and comfy....Do you think I may have H1N1....better know as the swine flu? How do you tell? I dont have a fever, I have a cough....everyone is getting it....gee, thanks for including me! I feel so special now.
Just one other note....I secretly am not too sure about Relief Society. Maybe its all the "girl gab" (Hey, I am a dude!) but when Nana takes me....I know the gals love me but........ I would rather squeak and squawk til Nana gets the hint and takes me to the BEST place ever...the halls where I can hear the Primary sing....now that is AWESOME!
Hugs and kisses, Bosty
Just one other note....I secretly am not too sure about Relief Society. Maybe its all the "girl gab" (Hey, I am a dude!) but when Nana takes me....I know the gals love me but........ I would rather squeak and squawk til Nana gets the hint and takes me to the BEST place ever...the halls where I can hear the Primary sing....now that is AWESOME!
Hugs and kisses, Bosty
Sunday, October 18, 2009
Picture Day !
I went to Aunt Karen's to get my pictures taken ! I was not feeling good that day and mommy kept saying I was so fussy and she didn't know why ! I just don't feel good sometimes ! Teagen didn't want to cooperate either but eventually mommy and Aunt Karen were able to bribe him with some smarties ! I could hear Teagen say CHEESE ! Then it was my turn ! They let me sit in my big comfy colorful chair from the physical therapist ! Aunt Karen said she thought the colors were pretty ! My mom changed me in to the new clothes that Grandma Pranger bought me. They are so snuggly and warm! Thanks Grandma! One more thing about the pictures...that soft box sets off a bright light ! Every time Aunt Karen pressed the camera button and the light flashed I would blink !
My mom is the best ! I love this picture of her holding me because it shows what a great mommy I have ! She always takes such good care of me ! Even when I'm cranky and she's so tired and she wants to cry she still keeps it together for my sake and helps me feel as comfortable as possible. I think every kid in this whole world deserves a mommy like mine ! I love you mommy!
My mom is the best ! I love this picture of her holding me because it shows what a great mommy I have ! She always takes such good care of me ! Even when I'm cranky and she's so tired and she wants to cry she still keeps it together for my sake and helps me feel as comfortable as possible. I think every kid in this whole world deserves a mommy like mine ! I love you mommy!
Friday, October 16, 2009
Thanks GAM
I got some new hats my GAM (Great Aunt Margie) made....they are sssuuuppeerrr warm! Thanks GAM- I heart you!
Wednesday, October 14, 2009
Its a.......JPEG.....and ya, 4 ounces was all it took......YUCK! I still think I am gonna barf.
Hope mommy went to the potty BEFORE we left Primary's....really, just how do mommys think they can potty train when they cant even go before they do the "potty dance"? I think I am gonna stick with diapers.
Bosty
Hope mommy went to the potty BEFORE we left Primary's....really, just how do mommys think they can potty train when they cant even go before they do the "potty dance"? I think I am gonna stick with diapers.
Bosty
I can Giggle!!
The other night Popa and I were hangin out and he was tickling me and it felt so funny that I giggled....I KNOW...it even surprised me! Then it felt soooo good that I got excited and Popa kept tickling me and there it came again....another giggle. Well, what do you know...I can giggle!
Oh......it felt so good to let out a good ole giggle....no wonder people like it so much!
:-) Giggles and jiggles (I am still 'with extra padding')...Bosty
Oh......it felt so good to let out a good ole giggle....no wonder people like it so much!
:-) Giggles and jiggles (I am still 'with extra padding')...Bosty
Tuesday, October 13, 2009
Today mommy, popa, Aunt Lucy and I went to Primary's to see a surgeon for my JPEG. The car ride was fun and I could hear lots of giggling!
We met with the doctor and he thought it would be better if I had a JPEG rather than a Gtube. A Gtube goes straight to the tummy and the JPEG goes to the lower intestine. The doctor was so nice, he listened to mommy and popa and took great care of me and my issues.
Tomorrow I will go to have an upper GI test....they are gonna give me yucky stuff and try to see how I gag and try to throw up.....doesnt that sound like fun, fun, fun!!! (you are all invited and I will be willing to share the experience with all!)
If I get a JPEG I will get a 20 hour attachment of tubes....that means more work for mommy. Sorry Mommy! I may also get to sport a little "Tube mustache" and be placed on oxygen.
We went to the U of U bookstore (mommys fav place to shop) and then out to The Pie to eat pizza....I LOVE the smell of that pizza....I am gonna have to figure out how to get me a bite.
I am having harder seizures and sleeping a lot more....I dont like the seizures they frustrate and confuse me. I am lucky so many hold me so I dont feel so afraid. I love my family!
One last thing about the car ride...why do girls "hold it" until they are gonna explode? I dont think mommy or Aunt Lucy could have handled one more bump (even though popa tried)....Mommy and Aunt Lucy can sure run fast when their bladders are about to burst! I sure love mommy and Aunt Lucy!
Bosty
We met with the doctor and he thought it would be better if I had a JPEG rather than a Gtube. A Gtube goes straight to the tummy and the JPEG goes to the lower intestine. The doctor was so nice, he listened to mommy and popa and took great care of me and my issues.
Tomorrow I will go to have an upper GI test....they are gonna give me yucky stuff and try to see how I gag and try to throw up.....doesnt that sound like fun, fun, fun!!! (you are all invited and I will be willing to share the experience with all!)
If I get a JPEG I will get a 20 hour attachment of tubes....that means more work for mommy. Sorry Mommy! I may also get to sport a little "Tube mustache" and be placed on oxygen.
We went to the U of U bookstore (mommys fav place to shop) and then out to The Pie to eat pizza....I LOVE the smell of that pizza....I am gonna have to figure out how to get me a bite.
I am having harder seizures and sleeping a lot more....I dont like the seizures they frustrate and confuse me. I am lucky so many hold me so I dont feel so afraid. I love my family!
One last thing about the car ride...why do girls "hold it" until they are gonna explode? I dont think mommy or Aunt Lucy could have handled one more bump (even though popa tried)....Mommy and Aunt Lucy can sure run fast when their bladders are about to burst! I sure love mommy and Aunt Lucy!
Bosty
Friday, October 9, 2009
Just love
Just a dose of love.....I love you all so much....especially my hero, my all...mommy!
I wish I could hug YOU, snuggle YOU and blow YOU kisses...in my heart, I always have....I just can't do it physically.
You are the smile in my heart, the wind in my balloon, and the color in the most spectacular sunset....and I love you so much!
Simply put.....I will miss you and I heart you more than I can ever tell or show you!
"please come to Boston for the springtime............I am stay'n here with some friends and we got lots of room"- I love that song! Just a bit of adjustment to the words......mommy.."now this drifters world goes round and round and I doubt if its ever gonna stop and of all the dreams I lost and found and I that I aint got... I need someone to cling to, somebody I can sing toooooo(you mommy!)".................. "please come to heaven to live forever (with me), earth life is alone is just too hard to live (without Jesus), we'll live in a house that looks out over the the ocean, there's some stars that fell from the sky (our signal) live'n up on the hills....please come to Boston....."
I LOVE YOU!
I wish I could hug YOU, snuggle YOU and blow YOU kisses...in my heart, I always have....I just can't do it physically.
You are the smile in my heart, the wind in my balloon, and the color in the most spectacular sunset....and I love you so much!
Simply put.....I will miss you and I heart you more than I can ever tell or show you!
"please come to Boston for the springtime............I am stay'n here with some friends and we got lots of room"- I love that song! Just a bit of adjustment to the words......mommy.."now this drifters world goes round and round and I doubt if its ever gonna stop and of all the dreams I lost and found and I that I aint got... I need someone to cling to, somebody I can sing toooooo(you mommy!)".................. "please come to heaven to live forever (with me), earth life is alone is just too hard to live (without Jesus), we'll live in a house that looks out over the the ocean, there's some stars that fell from the sky (our signal) live'n up on the hills....please come to Boston....."
I LOVE YOU!
Thursday, October 8, 2009
hangin out
This week has been kinda quiet..YIPEE! I have been hanging out with mommy and Teag. Its nice to just stay home and enjoy time with them. I love you mommy!
I have spent a few days with Popa and Nana....I napped with Popa during the second session of conference. I dont know who snored the loudest but my guess is it was Popa, but I am sure he thought it was me. Then I smelled some wonderful food Nana was cooking- wish I could have that!!! YUMMY!
Mommy, we could be anywhere and it would be heaven..I just love being around you and snuggling in your arms!
I have had the nasty squirts lately...Sorry folks, there are not many words to best describe this other than "nasty squirts"
I have been sleeping a lot too. I needed some rest. It feels good.
Mommy got me some nice warm clothes and I have been so snuggly warm. I had a nice lady bring me some WARM slippers, a jacket and some gloves....oh how I love to be warm- thanks Sis Bennion- you are a nana in my heart!
Love to all.....Bosty
I have spent a few days with Popa and Nana....I napped with Popa during the second session of conference. I dont know who snored the loudest but my guess is it was Popa, but I am sure he thought it was me. Then I smelled some wonderful food Nana was cooking- wish I could have that!!! YUMMY!
Mommy, we could be anywhere and it would be heaven..I just love being around you and snuggling in your arms!
I have had the nasty squirts lately...Sorry folks, there are not many words to best describe this other than "nasty squirts"
I have been sleeping a lot too. I needed some rest. It feels good.
Mommy got me some nice warm clothes and I have been so snuggly warm. I had a nice lady bring me some WARM slippers, a jacket and some gloves....oh how I love to be warm- thanks Sis Bennion- you are a nana in my heart!
Love to all.....Bosty
Monday, October 5, 2009
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